Resources and articles about Long COVID and ME (myalgic encephalomyelitis):
- What It Feels Like To Have Long COVID
- The Severe PEM Crash Survival Guide
- How to get more Paxlovid – how to get more than a 30-day course of Paxlovid… with a little help from your friends (or family!)
- LC/ME Data – an organization I started that does collection and analyses of Long COVID and ME data
What I’m working on next:
- Open Problems, a comprehensive list of unsolved problems in Long COVID and ME, where people can sign up to provide solutions and be mentored by an expert team
- A benzodiazepine Treatment Experience Survey for LC/ME Data
- United Nations of Long COVID and ME – a chat uniting organizers from each country to share tactics and information for advocacy and serving patients
- So you have ME, now what? – a guide for new patients
- ME/CFS Testing Guide – the first high-quality, succint testing guide for motivated patients